Tuesday, April 2, 2013
The Cystic Fibrosis (CF) Foundation is hosting Great Strides: Taking Steps to Cure Cystic Fibrosis Walks nationwide on Sunday, May 19, to raise funds for research and awareness. It is the Cystic Fibrosis Foundation's largest national fundraising event. In 2012, nearly $40 million was raised to help support life-saving research, quality care, and education programs.
Kelly Hartner, Information Systems Enterprise Network Manager at Westminster, and her husband host a team, Claire's Hope, in honor of their daughter Claire. Since their initial sign up, ten years ago, the team has grown with family and friends' support. In light of the ten year anniversary, the team has made special t-shirts for participating walkers. Team Claire's Hope and other supporters of the effort will walk the bike trail in Moraine State Park, in Butler, Pa, on May 19, 2013 at 10:00 AM. Ninety percent of the funds collected by the Cystic Fibrosis Foundation will go to research.
"We are thankful for all of the hard work that the Cystic Fibrosis Foundation is doing. The past research and drug therapies that Claire has been able to take advantage of have improved the quality of her life and hopefully extended it," Hartner shared. "We are even more thankful to our family and friends, including the Westminster Greeks that not only support us but our fundraising efforts, too. They are what truly give us hope."
Cystic Fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States and 70,000 worldwide. As medical research progresses and potential drugs continue to be trialed, fund raising becomes more important. One drug that has shown improved in lung function for those with CF, Kalydeco, was passed by the FDA in January 2012. Kalydeco is one of the drugs that Claire needs to help with her CF defect. Other drugs that she could potentially help her are currently being trialed with Kalydeco.
If you are interested in or would like more information on joining the effort, please contact Kelly and Eric Hartner at firstname.lastname@example.org or by calling (724) 946-9072. Register for this or another walk near you at http://www.cff.org/great_strides For more information about the Cystic Fibrosis Foundation, please visit www.cff.org.